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The purpose of this page is to give a brief description of my sons health condition, summarize events and link all documents and media available.

Name

Sex

Height

Weight

Age

Current Condition

Eric Nitra

M

122cm

24kg

7 (16.01.20217)

Suspected Autoimmune deficiency. Hospitalized.

Child’s Health Overview

As per last medical letter he has been diagnosed with Immunodeficiency under observation, Systemic inflammatory disease, Paroxysmal brain seizure, Adverse drug reaction, Transient bradycardia, Emotional disturbance.

He is currently hospitalized at the Psychiatry and Neurological Hospital Obregia and being treated after a couple of episodes of Focal Seizures. He has a mediocre state with various tremors and rhythmic movement of hand and fingers, emotional distress, headaches, unable to properly walk or move his left handhaving spasms in the torso and left hand which don’t let him sleep. He can’t walk and can’t control his left hand. He cannot sit straight. Must be supported. Current suspicion is Atypical Autoimmune Encephalitis, but cannot be confirmed.

Chronological summary of major health events

Date

Symptoms

Paraclinic

Treatment

Documents and Media

27/02/2024-ongoing

Alexandru Obregia Psychiatry and Neurological Hospital.

Focal Crisis on the evening of 27/02/2024. He is responsive during most of the crisis, expect at peak in the hospital where he has foam around his mouth specific jerky movements;

29/02/2024 1430 another focal seizure.

He complains about headaches, blurry vision, tremors, twitching fingers and hands. Is very unstable when walking.

01/03/2024 - MRI reveals brain inflammation. Blood samples are normal. No antibodies found.

Doctors suspect Autoimmune encephalitis.

27/02/2024 Diazepam, Solu-Medrol, Levetiracetam;

29/02/2024 Medication does not improve condition. Changed to Phenytoin . Immunoglobulin and Solu-Medrol.

01/03.2024 Immunoglobulin, Levetiracetam, fen.., solumedrolSolu-Medrol

02/03/2025 Immunoglobulin, Levetiracetam, Phenytoin, Solu-Medrol;

03/03/2024 solumedrolSolu-Medrol, immunoglobulinImmunoglobulin, Fenton, Levetiracetam Phenytoin, Levetiracetam, Diazepam.

He was having almost no jerking during sleep. He was waken up for Phenytoin and was much worse afterwards. Started having hallucinations.

04/03/2024 3AM He had a start of a crisis at 3AM. Was stopped with Lorezepam.

WhatsApp Video 2024-03-04 at 03.48.17.mp42024-02-29 at 21.08.48 Continously pulsating hand.mp4IMG_7781.mov

After phenytoin

View file
nameNITRA^ERIC RMN_CEREBRAL_NATIV.zip

View file
name2024-03-01 INTERPRETATION BULLETIN - MRI.pdf

22/02/2024-27/02/2024

Children's Hospital in Brasov | Acute Therapy

He has another episode of focal seizure. Is being hospitalized.

Diagnosis:
- Immunodeficiency under observation
- Systemic inflammatory disease
- Paroxysmal brain seizure
- Adverse drug reaction
- Transient bradycardia
- Emotional disturbance

View file
name2024-02-27 Medical Letter - Spitalul de copii - en.pdf

2024-02-22 Filmed Crisis.mov

21/02/2024

Allergy Test

We have been to an Allergy doctor to get him checked. Prick test and other clinical tests did not reveal any allergies. Further tests must be done.

View file
name2024-02-21 Interm Medial Report - Regina Maria - en.pdf

03/02/2023-09/02/2023

Alexandru Obregia Psychiatry and Neurological Hospital.

Focal Crisis on 3rd of February. Estimated duration between 5 and 20 minutes.

1 febrile croset. Otherwise afebrile, in good general condition, does not repeat seizures. Fleeting erythema in emotional context.

03/02/24 Cerebral MRI. EEG wake and sleep.

07/02/24 hlg with leukocytes within normal limits, no anemia, platelets within normal limits, peripheral blood smear within normal limits, no hepatocytosis, no nitrogen retention, ionogram within normal limits, mildly elevated cholesterol and LDL-cholesterol, biological inflammatory syndrome anbsent.

Dexamethasone intravenous

Ibuprofen

Paracetamol

View file
name2024-02-09 Medical Letter - Obregia - en.pdf

View file
name2024-02-09 Hospital Release Note - Obregia - en.pdf

View file
name2024-02-06 RMN SCAN.zip

22/12/2023-03/01/2024

Grigore Alexandrescu Children's Hospital | ICU

Generalized macular lesions.
Dry skin with desquamation.
Palmar erythema.
Polypnea.
Dyspnoea.
Desaturations up to 89%.

Azithromycin 5 days.
Tazocin.
Peperacillin/tazobactam 5 days
Clinidamycin 6 days
Levofloxacin 6 days
Mycomax, then Caspofungin 7 days
Immunoglobulin iv (2.5g/day, 3 administrations)
Valganicyclovir
Corticosteroids
Bronchodilator

HFNC 20-25 L/min
CPAP

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